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A low vision diagnosis can be overwhelming and isolating, but hearing from others with similar experiences can provide comfort and guidance. Jewel, a Home Care client, shared her story of adapting to life with low vision and how she continues to make the most of everyday activities despite her condition.
1. Can you describe when you first noticed changes in your vision? What were the initial signs?
Issues with my eyesight began in childhood. I was about 8 years old and couldn’t read the blackboard. I had my eyes checked and suffered from extreme shortsightedness. I got glasses and that worked for me until I was about 69 years old. About 8 years ago I was diagnosed with glaucoma and had surgery. People with myopia (elongated eyes that stretch the retina and make tears more easily). Retinal tears cause “flashes” before your eyes. I started to have flashes which turned into a hole, I had surgery but unfortunately, the hole was too large, and the operation was unsuccessful. Up until 7 years ago I could read and write and now I can only see light and dark.
2. What are some adjustments you've found so you're able to continue doing the things you enjoy?
Although, I feel that I have made no real adjustments, the most important thing I did was to contact Vision Australia and Guide Dogs Australia. Vision Australia taught me to use a cane and initially provided support which was an immense help during that time of transition. They supported me and helped build my confidence and independence. I also received assistance navigating My Aged Care and NDIS support.
I love to read and write, and Vision Australia and Guide Dogs have offered training in using a system called Voice Over which teaches you how to use an Apple device without having to see it. I use Facebook to keep in touch with my friends and family. I have always loved to read books and listen to documentaries.
3. What roles have healthcare professionals, like your GP or eye specialist, played in helping manage your vision
My eyecare specialists have played a vital role in my care and treatment. My specialists managed my condition as well as they could and have done everything except perform a miracle! I continue to see my Glaucoma and Retinol specialists every three to months.
4. What advice would you give someone who is newly experiencing symptoms of low vision?
As soon as you start to experience low vision or changes in your vision such as flashes of light get your eyes checked immediately. Get a referral from your GP to see an Ophthalmologist. Watch for the signs and do not dismiss them!
5. What message would you like to share with people who are feeling isolated or frustrated by their vision loss?
It was very difficult dealing with losing my eyesight. I would recommend going to Guide Dogs and Vision Australia for support.
Guide Dogs pulled everything together, and organised an occupational therapist, orientation and mobility, and voice-over lessons. Guide Dogs introduced me to a program called Chatter Paws, an hour of the week that is not isolated and we get together and we talk and joke about all kinds of things. We have a few jokes, we give each other hints about various things we’re having difficulty with, and we have become friends. I cannot thank Guide Dogs enough for what they have done for me. Quite frankly, they saved my sanity, if not my life.
The Home Care team is always here and available to support you through your journey. Reach out to our team below, or call 13 18 19 for more information.
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